Rare diseases

Rare diseases

Genetic Alliance, Inc.

Disease search, genetic issues, and support groups

created: 11 Jul 2003 by adittmer ::: updated: 21 Oct 2004

Genetic and Rare Diseases Information Center

Clinical research, current clinical studies, genetic and rare diseases information center, resource materials

created: 11 Jul 2003 by adittmer ::: updated: 21 Oct 2004

Genetics Home Reference

Browse either by disease/condition or by gene, glossary of genetic terms, links to clinical trials related to the disorder, advanced genetic information

created: 30 Apr 2004 by adittmer ::: updated: 21 Oct 2004

Health on the Net Foundation-Rare Diseases

List of rare diseases, clinical trials, MeSH hierarchy and definition, web resources, images, news, and conferences and events

created: 11 Jul 2003 by adittmer ::: updated: 21 Oct 2004

Healthfinder

Disease specific information, links to resources on the internet

created: 11 Jul 2003 by adittmer ::: updated: 21 Oct 2004

Medline Plus

Links to research, treatment, dictionaries, directories, laws and policies, and organizations

created: 11 Jul 2003 by adittmer ::: updated: 21 Oct 2004

National Organization for Rare Disorders

Search NORD's rare disease database, browse the index of rare diseases, find a support group, or find out about new and experimental orphan products

created: 11 Jul 2003 by adittmer ::: updated: 21 Oct 2004

Office of Orphan Products Devlopment

Office of Orphan Products Development (OOPD) has been dedicated to promoting the development of products that demonstrate promise for the diagnosis and/or treatment of rare diseases or conditions.

created: 11 Jul 2003 by adittmer ::: updated: 21 Oct 2004

Office of Rare Diseases

Research and clinical trials, rare diseases terms and information, genetic and rare diseases information center, patient support groups, research resources, genetics information, reports and publications

created: 11 Jul 2003 by adittmer ::: updated: 21 Oct 2004

Orphanet

Search the database for rare diseases and orphan drugs. The term "orphan drug" refers to a product that treats a rare disease affecting fewer than 200,000 Americans. This site is available in many languages.

created: 11 Jul 2003 by adittmer ::: updated: 21 Oct 2004